We get it, and it's okay. It makes sense for you to feel really frustrated and helpless at this point, and this is a safe place to voice your feelings, so you're doing that. I also get it personally. While this hasn't typically been the flavor of my own suicidality or depression, it was something my father, who I cared for, struggled with for a solid half of his life, and never fully shook (he, however, did not usually have any access to ongoing healthcare, so a lot of even basic treatment just wasn't even accessible to him). I also have had close friends who have been in similar spots, too. I can clearly remember a time in my teens following a years-long period of suicidality and then a devastating loss, where I began to fall into this kind of numbness, and it felt earnestly terrifying when I realized what was happening. I would not say there is a secret group of people who feel like you do but don't talk about it or are doing just fine somehow. They're not so secret, and I don't think most of them are doing fine. But it does sound like you haven't yourself yet encountered any of them, which has obviously been very isolating.
All of that is to say that I have some sense of where you are and where you've been and I understand you feeling how you do about it. I think it would be far worse if you were not able to at least access the feelings about this you are, and in your case, I count that as a win.
In other words, it's clear you do still experience
some feelings. Like, here they are, in the flesh, and pretty intensely, no less. Like Simon talked about with expectations for sex, I want to make sure that you're not creating expectations of what feelings are that don't include, say, anger and frustration, two things that are also very much feelings. I do hear and see that it seems like you've been cut off from a fuller range of feelings for a long time, including feelings that generally feel better than this kind, but I just don't think we help ourselves if and when we create all or nothing frameworks when where we are actually at is somewhere in between, you know?
I do agree with s.e. that this therapist sounds like they aren't actually serving you well, including by talking about or framing depression only as a symptom, rather than as a mental health and medical issue all on its own.
I worry that they might be playing a part in you feeling so hopeless, or things like thinking there are no treatment protocols for anhedonia besides "just keep doing the things you used to like" and what sounds to me like an oversimplification of the options for the kind of mental health issues you've been having as "treatments are made for big emotions (bc they disrupt others) and meds have a documented blunting/numbing affect." That's not my understanding of the options for treatment for anhedonia and I do think that's too simplified a view of treatment and medication. You asking at the end of this about how, if your depression is so resistant to treatment, might it not be depression is also a sound question in my book. By all means, some depression is really just super resistant to current treatments, but you're right, it also may be that depression, or depression by itself, is not all that's going on here. The fact that you are also autistic is something I'd also hope anyone and everyone trying to help you is bearing in mind. My understanding is that autism really complicates trying to find effective treatments further, and that
autism itself can sometimes be the issue when something looks like TRD.
I also hear you about the frustrations of doctors being unwilling to work together. Sometimes they are, and other times they aren't, and as someone who has had more of the experience you have with that when it came to my own chronic health conditions, I get the frustration there, too. If you want some help with how to at least try to get your healthcare team to work together, I'm happy to offer some suggestions. At the same time, as a person with chronic health conditions with a lot of people in my life with same, I also 1000% get just being exhausted with the whole system and trying a gazillion things and going on and off meds and having people suggest things that are earnestly insulting. I'd also completely get it if you didn't want anything to do with any kind of healthcare at this point, including wanting to try things with another therapist.
Ultimately, while you came here with this being about sex, because how things are with you and sex are clearly about a much larger and very longstanding mental health issue, I'm sorry to say that we're just not going to be able to do much for you here about it, which is why our user guidelines and the text at the bottom of every page here make clear that we can't stand in for medical care and that we also aren't qualified to -- nor is this a sound environment for -- help users with mental health issues -- and also what sound like longstanding physical health issues as well, like chronic pain and fatigue -- like this.
What we
can do is some of the things we're doing here.
We can:
• Offer you emotional support and witnessing around this whole thing, particularly the sexual or interpersonal challenges it's included
• Offer practical suggestions and help when it comes to navigating healthcare that come more from a mutual aid/peer information sharing place than a medical professional place
• Help finding other people who share some of what you've been experiencing -- including online groups like
https://www.reddit.com/r/anhedonia/ or
https://www.reddit.com/r/depression/com ... epression/ -- or other resources for any part of this you'd like help finding resources for
• Offer to help you grow your support net -- I don't get a sense of what the whole of your life looks like when it comes to any other people in it besides healthcare providers and family you don't have or want relationships with, but if that's also a pretty empty field, that obviously won't be helping how hard this all is for you
If any or all of that sounds like help you want, we're here for it, just let us know what that is and what kind of help from us you want with it. But I do think it sounds like we might be at the end of the road in terms of what help we can offer you with anything that's expressly medical just because of our limitations being a sex and relationships education organization with the kinds of online services we offer and the ways we run them, rather than, say, a mental healthcare provider whose job this is, who has clinical training and credentials, your whole health history (which it makes such a big difference to have from the start -- for example, had we known from the start from intake forums alone about both the treatment-resistant depression and your autism we might have done things a little differently or offered different resources) a private office, HIPAA protections and the like. <3